I’ve been researching treatment harms for 3 decades and founded RxISK.org in 2012, now an important site for people to report these harms. They’ve been reporting in their thousands often in personal accounts that feature health service gaslighting. During these years, our treatments have become a leading cause of mortality and morbidity, the time it takes to recognize harms has been getting longer, and our medication burdens heavier. We have a health crisis that parallels the climate crisis. Both Green parties and Greta Thunberg’s generation are turning a blind eye to the health chemicals central to this. We need to understand what is going wrong and turn it around.
In focusing on her daughter, Luise, a mother, Dorrit Cato, in this extraordinary book captures all that is going wrong and getting worse in medical care today. Very early on you know what is going to happen and feel powerless to stop it. Maybe I feel this way so much because I see it happening every day. I’ve bought lots of copies and given Dear Luise to many working in healthcare, who have found it equally raw. If you only have minimal encounters with healthcare or encounters where things have gone well, you may find this story sad but think it a rare exception. Trust me, in mental healthcare today Dear Luise is the norm, and tomorrow it will be the norm for all of health.
‘An unintended event.’ This was the bland phrase used to describe Luise’s sudden death in the psychiatric ward at Amager Hospital in Copenhagen, Denmark. She was 32.
Dear Luise is a mother’s deeply personal account of her struggle to ensure her daughter’s survival through 20 years of treatment in the Danish mental health system. It is an alarming – and thoroughly documented – exposé of the abject failure of the medication-based treatment regimen routinely imposed on vulnerable psychiatric patients. This book is also a poignant tale of love and hope, brimming with tender memories of the creativity, originality and wry…
Every so often, a masterpiece tumbles out of someone who has never written anything before and thinks they can’t write. Katinka Newman clearly didn’t stop to think whether she should include this trivial detail or leave in what she had just written about that person – the result is a book that hangs together perfectly. You know this is exactly what happened. You witness the extraordinary downward spiral of someone getting supposedly the best mental healthcare there is. What you don’t expect is how she escapes from near-certain death. Newman doesn’t quote any antipsychiatry people telling us how bad psychiatry is but her account of what happened to her is all the more devastating for sticking just to her story.
While going through a divorce, documentary filmmaker Katinka Blackford Newman took an antidepressant. Not unusual - except that things didn't turn out quite as she expected. She went into a four-day toxic psychosis with violent hallucinations, imagining she had killed her children, and in fact attacking herself with a knife. Caught up in a real-life nightmare when doctors didn't realise she was suffering side effects of more pills, she went into a year-long decline. Soon she was wandering around in an old dressing gown, unable to care for herself, and dribbling. She nearly lost everything, but luck stepped in; treated…
Adverse Reactions opens with a grim story about a medical father who has given chloramphenicol, an apparently safe drug, to his son and watches him die a slow and agonizing death. The father's efforts to make sure this cannot happen again are extraordinary. Almost single-handedly he lays the basis for the drug safety systems we now have. At the same time, the drug company that made chloramphenicol invented the playbook which means these safety systems don’t work and prescription drug-induced death may now be the commonest form of death there is.
The author of Children of Psychiatrists recreates one of the largest and most controversial investigations in medical history, presenting the story behind Cholramphenicol, a widely-used antibiotic that resulted in hundreds of deaths, innumerable lawsuits, and countless FDA actions.
In The Zyprexa Papers Jim Gottstein runs two parallel stories. One is a thriller covering his efforts to get company documents from Zyprexa’s maker, Eli Lilly, that reveal its hazards and how Lilly hid those hazards, into the public domain and his subsequent trial for doing so. The other centers on the mental health patients he spends most of his time helping avoid being given drugs like this. The patients, especially Bill Bigley, are the beating heart of this book. Their stories bring home the consequences for them of the documents Gottstein took such risks to make public. This is Eric Brockovich – except that Hollywood is too scared of pharma and too dismissive of mental health patients to make this movie. You’ll just have to read the book.
On December 17, 2006, The New York Times began a series of front-page stories about documents obtained from Alaska lawyer Jim Gottstein, showing Eli Lilly had concealed that its top-selling drug caused diabetes and other life-shortening metabolic problems.
The "Zyprexa Papers," as they came to be known, also showed Eli Lilly was illegally promoting the use of Zyprexa on children and the elderly, with particularly lethal effects. Although Mr. Gottstein believes he obtained the Zyprexa Papers legally, the United States District Court for the Eastern District of New York in Brooklyn decided he had conspired to steal the documents, and…
For many, Thalidomide is like King Arthur – a story lost in the mists of time. Except, like the Knights Templar or the Holy Grail, it still lives. People are still trying to find out who made it, still trying to find out how it causes the birth defects and other problems it causes, and still trying to claim it cures cancers and Covid – which it might.
In a scenario that takes the hitman’s ‘nothing personal, it’s just business’ dilemma to unimaginable reaches, through the 1960s and 1970s senior Nazis plotted with Israeli scientists to defend this drug. Like Chou-en-Lai’s 1970 comment that it’s too soon to know what the French Revolution really meant, it’s too soon to know how the thalidomide story ends, but it’s worth bingeing on this book, nonetheless.
"This momentous book is the first comprehensive history of thalidomide. ... It demonstrates how many thousands of victims could have been spared very late in the day if Chemie Grünenthal had taken any notice of the early alarms: ... [It] carries conviction by its scientific rigor, and the clarity of the writing. Fifty years after the deaths and sufferings, the thalidomide tragedy is marked by ... the odour of corruption and cover up." - Sir Harold Evans, former editor of The Sunday Times and The Times
Shipwreck is about a transformation of healthcare, which aimed to help us live the lives we want to live, into health services, which sell us disorders and pills to go with them and condition us to live the lives that the major pharmaceutical companies want us and our families to live. It outlines how companies have hidden clinical trial data, ghostwrite all articles on medicines in leading journals, and stack the deck so that if you are injured by a drug your chances of getting the harm recognized are getting ever more remote.
If we wish to set things right, we need to build a new Caring Economy and it may be women rather than men that make this happen.
